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RECRUITING
NCT05437536

The Severe Von Willebrand Disease (sVWD) Patient Registry

Sponsor: VWD Connect Foundation

View on ClinicalTrials.gov

Summary

A web-based registry will be created by the sponsor, VWD Connect Foundation (VCF), to collect data on patients with severe Von Willebrand Disease (sVWD). Data will be self-reported by patients and/or collected by registry personnel, as appropriate. The purpose of the sVWD Patient Registry is to create a database of well-characterized (with respect to demographics, medical history, symptoms, laboratory and genetic data, etc.) patients with sVWD for participation in retrospective and prospective research.

Official title: The Severe Von Willebrand Disease Patient Registry: a Longitudinal Natural History and Patient Outcomes Study

Key Details

Gender

All

Age Range

Any - Any

Study Type

OBSERVATIONAL

Enrollment

400

Start Date

2021-12-10

Completion Date

2027-01

Last Updated

2025-02-17

Healthy Volunteers

No

Locations (1)

VWD Connect Foundation

Wellington, Florida, United States