Clinical Research Directory
Browse clinical research sites, groups, and studies.
The Severe Von Willebrand Disease (sVWD) Patient Registry
Sponsor: VWD Connect Foundation
Summary
A web-based registry will be created by the sponsor, VWD Connect Foundation (VCF), to collect data on patients with severe Von Willebrand Disease (sVWD). Data will be self-reported by patients and/or collected by registry personnel, as appropriate. The purpose of the sVWD Patient Registry is to create a database of well-characterized (with respect to demographics, medical history, symptoms, laboratory and genetic data, etc.) patients with sVWD for participation in retrospective and prospective research.
Official title: The Severe Von Willebrand Disease Patient Registry: a Longitudinal Natural History and Patient Outcomes Study
Key Details
Gender
All
Age Range
Any - Any
Study Type
OBSERVATIONAL
Enrollment
400
Start Date
2021-12-10
Completion Date
2027-01
Last Updated
2025-02-17
Healthy Volunteers
No
Conditions
Locations (1)
VWD Connect Foundation
Wellington, Florida, United States