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The Italian Transthyretin Amyloidosis Web-Network
Sponsor: Fondazione IRCCS Policlinico San Matteo di Pavia
Summary
The study aims, by generating a large registry of patients with ATTR amyloidosis, including data at diagnosis and during follow up, to describe the natural history of ATTR amyloidosis in a real-world setting and to define and validate prognostic models, response criteria applicable at any point of the disease. The registry will also be used for data sharing and to allow the possibility of a close collaboration amongst the amyloidosis experts of the ARTC and all the physicians around the Country involved in the diagnosis and management of systemic amyloidosis. Thanks to the online registry, the diagnostic facility of the ARTC will be made available to requesting physicians.
Official title: The Italian Transthyretin Amyloidosis Web-Network (ITA-WebNet)
Key Details
Gender
All
Age Range
18 Years - 99 Years
Study Type
OBSERVATIONAL
Enrollment
1000
Start Date
2022-07-13
Completion Date
2027-11-01
Last Updated
2026-03-27
Healthy Volunteers
No
Conditions
Locations (30)
ASST Ovest Milanese - Ospedale di Legnano
Legnano, MI, Italy
AOU San Luigi Gonzaga
Orbassano, TO, Italy
AOU Ospedali Riuniti
Ancona, Italy
Policlinico di Bari
Bari, Italy
ASST Papa Giovanni XXIII
Bergamo, Italy
ASST Spedali Civili di Brescia
Brescia, Italy
Ospedale Oncologico "Armando Businco"
Cagliari, Italy
Azienda Ospedaliera di Cosenza
Cosenza, Italy
Presidio ospedaliero di Ivrea
Ivrea, Italy
Asst Santi Paolo E Carlo
Milan, Italy
Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico
Milan, Italy
IRCCS Istituto Clinico Humanitas
Milan, Italy
Istituto Auxologico Italiano
Milan, Italy
Istituto Monzino
Milan, Italy
IRCCS San Gerardo Monza
Monza, Italy
'Azienda Ospedale. Università di Padova
Padova, Italy
Fondazione IRCCS Policlinico San Matteo
Pavia, Italy
Azienda Ospedaliera di Perugia
Perugia, Italy
Ospedale Civile ASL Pescara
Pescara, Italy
Azienda Ospedaliera Sant'Andrea
Roma, Italy
Ematologia ASL Roma 1
Roma, Italy
Fondazione Policlinico Universitario Agostino Gemelli CARDIOLOGIA
Roma, Italy
Policlinico Universitario Agostino Gemelli NEUROLOGIA
Roma, Italy
Plesso Ospedaliero "Andrea Tortora" di Pagani
Salerno, Italy
Azienda Ospedaliero Universitaria di Sassari
Sassari, Italy
Azienda Ospedaliero Universitaria Senese
Siena, Italy
Ospedale San Giovanni Bosco
Torino, Italy
l'Ospedale di Treviglio-Caravaggio
Treviglio, Italy
Osp. Sant'Andrea
Vercelli, Italy
Azienda Ulss 8 Berica
Vicenza, Italy