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RECRUITING
NCT05755451
Natural History of SMA
Sponsor: Fondazione Policlinico Universitario Agostino Gemelli IRCCS
View on ClinicalTrials.gov
Summary
This is an investigator initiated observational study with the aim to record several aspects of function, care and adverse events in a large cohort of SMA patients followed longitudinally by using a structured academic disease registry.
Official title: Natural History of SMA: Long Term Longitudinal Study and Development of a Registry
Key Details
Gender
All
Age Range
Any - Any
Study Type
OBSERVATIONAL
Enrollment
1200
Start Date
2018-06-21
Completion Date
2033-12-30
Last Updated
2023-03-06
Healthy Volunteers
No
Conditions
Locations (5)
Istituto Gaslini
Genova, Italy
Nemo Sud
Messina, Italy
Centro Clinico nemo
Milan, Italy
Ospedale Bambino gesu
Rome, Italy
Policlinico gemelli
Rome, Italy