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Enhancing Information Management for Young Adults After Genetic Cancer Risk Testing
Sponsor: Dana-Farber Cancer Institute
Summary
This research is being done to develop the electronic platform Nest for young adults (ages 18-39) who have had prior cancer genetic testing. The platform will give patients and their clinicians access to continuously updated information about both pathogenic variants and variants of uncertain significance (VUS). The name of the intervention used in this research study is: Nest portal (electronic platform for patients and clinicians)
Key Details
Gender
All
Age Range
18 Years - 39 Years
Study Type
INTERVENTIONAL
Enrollment
40
Start Date
2023-05-01
Completion Date
2026-07-30
Last Updated
2025-12-23
Healthy Volunteers
Yes
Interventions
Nest Platform
Patient- and clinician-facing portal via secure link
Locations (1)
Dana Farber Cancer Institute
Boston, Massachusetts, United States