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Rare Tumours in Children and Adolescents (STEP)
Sponsor: University Hospital Tuebingen
Summary
The aim of the STEP registry is to collect and evaluate experience and data on the diagnosis and treatment of rare childhood tumors in order to use the knowledge gained to improve the treatment prospects for our patients. The rarity of a disease should not be a disadvantage for the young patients.
Official title: Rare Tumours in Children and Adolescents (STEP 2.0) - Register for the Documentation of Rare Tumours in Children and Adolescents
Key Details
Gender
All
Age Range
1 Day - 18 Years
Study Type
OBSERVATIONAL
Enrollment
10000
Start Date
2023-01-11
Completion Date
2055-01
Last Updated
2024-10-01
Healthy Volunteers
No
Conditions
Interventions
Data collection
The data collection includes, among other things: Diagnosis of the rare tumor (pathological findings/ reference pathological findings), full name, birth date, gender, clinical registry inclusion and exclusion criteria met - yes / no, signed declaration of consent-yes / no, if yes: date of signature
Locations (1)
University Hospital Tübingen
Tübingen, Germany