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Improvement of Personalized Lung Cancer Care Through Digital Connection and Patient Participation (DigiNet)
Sponsor: University of Cologne
Summary
The aim of the DigiNet project is to improve the treatment of patients with advanced non-small cell lung cancer (NSCLC) in Germany. The project promotes the transfer of the latest scientific knowledge into standard care. The DigiNet project is based on the established precision medicine program, the National Network Genomic Medicine Lung Cancer (nNGM) in Germany, whereby every patient receives molecular diagnostics and personalized therapy information after the initial diagnosis. Within the framework of the DigiNet project, specialized academic centers will be digitally connected with practitioners via a shared project database. Furthermore, a committee of experts will monitor the course of treatment and will advise the practitioners in case of critical conditions. Additionally, patient-reported outcomes will be incorporated into the treatment.
Official title: Improvement of Personalized Cancer Care for Patients With Advanced Non-Small Cell Lung Cancer (NSCLC) Through Digital Connection of Specialized Cancer Centers, Community Hospitals, Private Practices and Patients (DigiNet)
Key Details
Gender
All
Age Range
18 Years - Any
Study Type
INTERVENTIONAL
Enrollment
850
Start Date
2022-06-01
Completion Date
2025-03-31
Last Updated
2024-06-04
Healthy Volunteers
No
Conditions
Interventions
DigiNet intervention
Patients with initial diagnosis of NSCLC stage IV in the model region receiving the following interventions: * broad NGS-based molecular diagnostics and, based thereupon, personalized treatment information within the national Network Genomic Medicine (nNGM) lung cancer * regular clinical follow-up visits and data documentation in the shared central digital database by participating physicians * monthly assessment of patient-reported outcomes (PRO) on quality of life, anxiety, and depression * incorporation of PROs into treatment by physicians * treatment monitoring and counseling in the case of critical conditions by expert committee
Locations (41)
Universitätsklinikum Würzburg
Würzburg, Bavaria, Germany
Hämatologisch-Onkologische Schwerpunktpraxis
Bad Liebenwerda, Brandenburg, Germany
Universitätsklinikum Aachen
Aachen, North Rhine-Westphalia, Germany
Johanniter-Krankenhaus Bonn
Bonn, North Rhine-Westphalia, Germany
Onkozentrum Bonn
Bonn, North Rhine-Westphalia, Germany
Universitätsklinikum Bonn (UKB)
Bonn, North Rhine-Westphalia, Germany
Zentrum für ambulante Hämatologie und Onkologie Rhein-Sieg (ZAHO)
Brühl, North Rhine-Westphalia, Germany
MV-Zentrum für Hämatologie und Onkologie
Cologne, North Rhine-Westphalia, Germany
Universitätsklinikum Köln
Cologne, North Rhine-Westphalia, Germany
MVZ West GmbH Standort Köln-Kalk
Cologne, North Rhine-Westphalia, Germany
Praxis Internistischer Onkologie und Hämatologie (pioh)
Cologne, North Rhine-Westphalia, Germany
Gemeinschaftspraxis für Hämatologie & Onkologie
Dortmund, North Rhine-Westphalia, Germany
Universitätsklinikum Essen
Essen, North Rhine-Westphalia, Germany
Praxis für Hämatologie und Internistische Onkologie
Hamm, North Rhine-Westphalia, Germany
Klinikum Leverkusen
Leverkusen, North Rhine-Westphalia, Germany
Kliniken Maria Hilf GmbH
Mönchengladbach, North Rhine-Westphalia, Germany
MVZ für Hämatologie und Onkologie
Mülheim, North Rhine-Westphalia, Germany
Praxis und Tagesklinik für Internistische Onkologie und Hämatologie
Recklinghausen, North Rhine-Westphalia, Germany
Krankenhaus Bethanien Solingen
Solingen, North Rhine-Westphalia, Germany
Onkologie Rheinsieg
Troisdorf/Bonn-Beuel/Bad Honnef, North Rhine-Westphalia, Germany
MVZ Medizinisches Versorgungszentrum am Marien-Hospital Wesel
Wesel, North Rhine-Westphalia, Germany
Medizinisches Versorgungzentrum am Evangelischen Krankenhaus Wesel GmbH
Wesel, North Rhine-Westphalia, Germany
Onkologie Erzgebirge
Aue-Bad Schlema, Saxony, Germany
Hämatologisch Onkologisches Centrum Ostsachsen ONCOS GmbH
Bautzen, Saxony, Germany
Fachkrankenhaus Coswig
Coswig, Saxony, Germany
Gemeinschaftspraxis Dr. med. Johannes Mohm Dr. med. Gabriele Prange-Krex
Dresden, Saxony, Germany
Gemeinschaftspraxis Hämatologie - Onkologie
Dresden, Saxony, Germany
Universitätsklinikum Carl Gustav Carus Dresden
Dresden, Saxony, Germany
Onkozentrum Dresden/Freiberg/Meißen
Dresden/Freiberg/Meißen, Saxony, Germany
Ambulante Onkologie Ostsachsen
Zittau, Saxony, Germany
Helios Klinikum Erfurt
Erfurt, Thuringia, Germany
Charité Universitätsmedizin Berlin
Berlin, Germany
Onkologische Schwerpunktpraxis Tiergarten
Berlin, Germany
Onkologische Schwerpunktpraxis Kurfürstendamm
Berlin, Germany
Praxis am Volkspark
Berlin, Germany
Vivantes Klinikum Neukölln
Berlin, Germany
Evangelische Lungenklinik Berlin
Berlin, Germany
DRK Kliniken Berlin Mitte
Berlin, Germany
Gemeinschaftskrankenhaus Havelhöhe
Berlin, Germany
Helios Klinikum Emil von Behring
Berlin, Germany
Onkologischer Schwerpunkt am Oskar-Helene-Heim
Berlin, Germany