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Utility of PCD Diagnostics to Improve Clinical Care
Sponsor: Connecticut Children's Medical Center
Summary
This cross-sectional and longitudinal observational study is to gather data on the utility of tests that are used to make a diagnosis of primary ciliary dyskinesia (PCD). There is new testing available, called nasal nitric oxide testing, that non-invasively measures nitric oxide levels in the sinus cavity. Individuals with PCD characteristically have low levels, but this testing does not have extensive data from everyday clinical practice. The objective of this proposal is to improve the diagnostic approach to children and adults with clinical concerns for primary ciliary dyskinesia (PCD).
Official title: A Clinical Study to Gather Data on the Utility of Tests That Are Used to Make a Diagnosis of Primary Ciliary Dyskinesia (PCD)
Key Details
Gender
All
Age Range
2 Years - Any
Study Type
OBSERVATIONAL
Enrollment
50
Start Date
2023-10-17
Completion Date
2028-12
Last Updated
2025-09-22
Healthy Volunteers
No
Conditions
Interventions
Nasal Nitric Oxide testing
Collection of already performed clinical data and nNO testing
Locations (1)
Pulmonary Division
Hartford, Connecticut, United States