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RECRUITING

NCT05902351

Natural History Study for Charcot Marie Tooth Disease

Sponsor: Hereditary Neuropathy Foundation

View on ClinicalTrials.gov

Summary

The goal of this Natural History Study for Charcot-Marie-Tooth is to acquire, record, and analyze patient-reported data and associated genetic reports, Electronic Health Records (EHRs) and clinical notes to identify the burden, diagnostic journey, and prevalence of disease that will aid scientists in their work toward finding a cure. Participants will be asked to complete a Natural History Survey.

Official title: Global Registry for Inherited Neuropathies Natural History Study for Charcot Marie Tooth Disease

Key Details

Gender

All

Age Range

Any - Any

Study Type

OBSERVATIONAL

Enrollment

10000

Start Date

2013-11-01

Completion Date

2029-12-31

Last Updated

2024-10-01

Healthy Volunteers

No

Conditions

Charcot-Marie-Tooth Disease Charcot-Marie-Tooth Charcot-Marie-Tooth Disease, Type IA Charcot-Marie-Tooth Disease Type 2A Charcot-Marie-Tooth Disease Type 2 Charcot-Marie-Tooth Disease, Type 2C Charcot-Marie-Tooth Disease Type 2A2B Charcot-Marie-Tooth Disease Type 2B2 Charcot-Marie-Tooth Disease Type 2A1 Charcot-Marie-Tooth Disease Type 4B1 Charcot-Marie-Tooth Disease, Type IB Charcot-Marie-Tooth Disease Type 2B1 Charcot-Marie-Tooth Disease Type 2U (Diagnosis)Charcot-Marie-Tooth Disease Type 4A Charcot-Marie-Tooth Disease, Type 4A, Axonal Form Charcot-Marie-Tooth Disease Type 2A2A Charcot-Marie-Tooth Disease Type 2S (Disorder)Charcot-Marie-Tooth Disease and Deafness Charcot-Marie-Tooth Disease Type 4B2 Charcot-Marie-Tooth Disease Type 4H Charcot-Marie-Tooth Disease Type 1F Charcot-Marie-Tooth Disease Type 4C Charcot-Marie-Tooth Disease Type 4E Charcot-Marie-Tooth Disease Type 1D Charcot-Marie-Tooth Disease Type 2Q (Diagnosis)Charcot-Marie-Tooth Disease Type 2A2 Charcot-Marie-Tooth Disease Type 2N (Diagnosis)Charcot-Marie-Tooth Disease Type 2B5 Charcot-Marie-Tooth Disease Type 2D Charcot-Marie-Tooth Disease Type 4D Charcot-Marie-Tooth Disease Type 2K Charcot-Marie-Tooth Disease Type 2L (Diagnosis)Charcot-Marie-Tooth Disease Type 2T Charcot-Marie-Tooth Disease Type 2I Charcot-Marie-Tooth Disease Type 2J Charcot-Marie-Tooth Disease Type 2E Charcot-Marie-Tooth Disease Type 2G Charcot-Marie-Tooth Disease Type 1C Charcot-Marie-Tooth Disease Type 2R Charcot-Marie-Tooth Disease Type 2O (Diagnosis)Charcot-Marie-Tooth Disease Type 2M Charcot-Marie-Tooth Disease Type 2P Charcot-Marie-Tooth Disease Type 2Y Charcot-Marie-Tooth Disease Type 4F (Diagnosis)Charcot-Marie-Tooth Disease Type 4B3 Charcot-Marie-Tooth Disease Type 2H HNPP X-Linked Charcot-Marie-Tooth Disease

Locations (1)

Hereditary Neuropathy Foundation

New York, New York, United States