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Synovial Sarcoma Registry / Biospecimen Repository
Sponsor: Children's Hospital of Philadelphia
Summary
The purpose of this study is to collect and store data and samples for future research to attempt to improve outcomes for patients with synovial sarcoma. The future research will involve various types of genetic testing. Participants will be asked to allow access to medical records and leftover tumor tissue and may be asked to give a blood or saliva sample. Participants will also be asked to completed questionnaires about their medical history and may be contacted every 6 to 12 months for updates for up to 10 years.
Official title: Synovial Sarcoma Registry and Biospecimen Repository
Key Details
Gender
All
Age Range
Any - Any
Study Type
OBSERVATIONAL
Enrollment
1000
Start Date
2023-06-12
Completion Date
2033-06
Last Updated
2025-06-04
Healthy Volunteers
No
Conditions
Locations (1)
Children's Hospital of Philadelphia
Philadelphia, Pennsylvania, United States