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The Adapting Disease Specific Outcome Measures Pilot Trial for Telehealth in Myasthenia Gravis
Sponsor: Yale University
Summary
The goal of this pilot study is to determine the reliability of myasthenia gravis (MG) specific outcome measures obtained during virtual encounters with patients with myasthenia gravis. The main question it aims to answer is: Are MG-specific outcome measures obtained during virtual encounters reliable? Participants will complete two virtual study visits in which they will be administered common MG-specific outcome measures and a newly developed outcome measure developed specifically for telemedicine assessments of MG patients.
Official title: The Adapting Disease Specific Outcome Measures Pilot Trial for Telehealth in Myasthenia Gravis (ADAPT-teleMG)
Key Details
Gender
All
Age Range
18 Years - Any
Study Type
OBSERVATIONAL
Enrollment
52
Start Date
2021-08-30
Completion Date
2023-01-20
Last Updated
2026-09-28
Healthy Volunteers
No
Conditions
Interventions
Telehealth
Two video telehealth visits will be conducted and recorded within 3 days of one another (+/- 1 day)
Locations (5)
Yale University
New Haven, Connecticut, United States
George Washington University
Washington D.C., District of Columbia, United States
University of Chicago
Chicago, Illinois, United States
Massachusetts General Hospital
Boston, Massachusetts, United States
Duke University Medical Center
Durham, North Carolina, United States