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COMPLETED
NCT05917184

The Adapting Disease Specific Outcome Measures Pilot Trial for Telehealth in Myasthenia Gravis

Sponsor: Yale University

View on ClinicalTrials.gov

Summary

The goal of this pilot study is to determine the reliability of myasthenia gravis (MG) specific outcome measures obtained during virtual encounters with patients with myasthenia gravis. The main question it aims to answer is: Are MG-specific outcome measures obtained during virtual encounters reliable? Participants will complete two virtual study visits in which they will be administered common MG-specific outcome measures and a newly developed outcome measure developed specifically for telemedicine assessments of MG patients.

Official title: The Adapting Disease Specific Outcome Measures Pilot Trial for Telehealth in Myasthenia Gravis (ADAPT-teleMG)

Key Details

Gender

All

Age Range

18 Years - Any

Study Type

OBSERVATIONAL

Enrollment

52

Start Date

2021-08-30

Completion Date

2023-01-20

Last Updated

2026-09-28

Healthy Volunteers

No

Interventions

OTHER

Telehealth

Two video telehealth visits will be conducted and recorded within 3 days of one another (+/- 1 day)

Locations (5)

Yale University

New Haven, Connecticut, United States

George Washington University

Washington D.C., District of Columbia, United States

University of Chicago

Chicago, Illinois, United States

Massachusetts General Hospital

Boston, Massachusetts, United States

Duke University Medical Center

Durham, North Carolina, United States