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Southeastern ATTR Amyloidosis Consortium: SEATTRAC Family Registry
Sponsor: Virginia Commonwealth University
Summary
The study design is a prospective registry including asymptomatic and symptomatic patients who carry a pathogenic TTR mutation. The study will enroll patients who meet the inclusion criteria and none of the exclusion criteria until 1000 patients are enrolled, at which point in time the study investigators will evaluate whether further patient accrual is meaningful.
Key Details
Gender
All
Age Range
18 Years - Any
Study Type
OBSERVATIONAL
Enrollment
1000
Start Date
2026-02
Completion Date
2030-12-01
Last Updated
2025-12-18
Healthy Volunteers
No
Conditions
Interventions
Registry
The purpose of this registry is to collect and store health information from people who are carriers of the gene known to cause hereditary amyloidosis and those with a confirmed diagnosis of the disease.
Locations (1)
Virginia Commonwealth University
Richmond, Virginia, United States