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Improving the Health of Parents and Their Adolescent and Transition-age Youth With Intellectual and Developmental Disabilities
Sponsor: University of North Carolina, Chapel Hill
Summary
This study will determine the comparative effectiveness of Go Act, a tailored advocacy curriculum versus Peer parent-directed peer learning for increasing parent activation for parents of youth with intellectual and developmental disabilities. Second, it will determine the comparative effectiveness of the two study arms for improving parent and youth health outcomes while assessing whether parent activation serves as a mechanism that mediates their effects on health outcomes.
Key Details
Gender
All
Age Range
11 Years - 27 Years
Study Type
INTERVENTIONAL
Enrollment
406
Start Date
2023-08-08
Completion Date
2026-05-31
Last Updated
2026-01-29
Healthy Volunteers
Yes
Conditions
Interventions
Go Act
Go Act sessions address becoming a parent who can 'Go Act,' caring for one's self as a parent, understanding and managing youth health needs, working with health providers as partners, and working with other service providers such as schools and vocational services. The intervention uses motivational interviewing, story-telling with self-disclosure, psycho-education introduced with a know-want to know-learned strategy, problem-solving, role play, and practice outside of class.
Peer
During Peer sessions facilitators lay ground rules for respectful and confidential sharing and encourage group discussion. The group provides a format to make personal connections through shared identity. Participants may discuss strategies for individualized advocacy, so that they learn from the experiences of others.
Locations (2)
The Carolina Institute for Developmental Disabilities
Carrboro, North Carolina, United States
UNC Adult Psychiatry Clinic
Chapel Hill, North Carolina, United States