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RECRUITING
NCT06036693

MPS (RaDiCo Cohort) (RaDiCo-MPS)

Sponsor: Institut National de la Santé Et de la Recherche Médicale, France

View on ClinicalTrials.gov

Summary

The goal of this observational study is to characterize the epidemiology and natural history of MPS diseases by building a retrospective and prospective collection of extensive phenotypic data from French MPS patients.

Official title: Mucopolysaccharidosis Patients in France in the Era of Specific Therapeutics

Key Details

Gender

All

Age Range

Any - Any

Study Type

OBSERVATIONAL

Enrollment

1000

Start Date

2017-12-20

Completion Date

2026-12

Last Updated

2026-02-11

Healthy Volunteers

No

Locations (23)

Centre Hospitalier Universitaire d'Angers

Angers, France

Hôpital des Enfants - Groupe Hospitalier Pellegrin

Bordeaux, France

Hôpital Morvan

Brest, France

Hôpital d'Estaing

Clermont-Ferrand, France

Hôpital Beaujon

Clichy, France

Hôpital Raymond-Poincaré

Garches, France

Hôpital Jeanne de Flandre

Lille, France

Hôpital de la Timone

Marseille, France

Hôpital Gui de Chauliac

Montpellier, France

Hôpital Brabois

Nancy, France

Hôpital Armand Trousseau

Paris, France

Hôpital de la Croix Saint-Simon

Paris, France

Hôpital de la Pitié-Salpêtrière

Paris, France

Hôpital Necker-Enfants Malades

Paris, France

Hôpital Robert Debré

Paris, France

Centre Hospitalier de Pau

Pau, France

American Memorial Hospital

Reims, France

Hôpital Pontchaillou

Rennes, France

Hôpital Charles Nicolle

Rouen, France

Hôpital de Hautepierre

Strasbourg, France

Clinique Monié

Toulouse, France

Hôpital des Enfants

Toulouse, France

Hôpital Clocheville

Tours, France