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Summary
Vitaccess Real MG (VRMG) is a patient registry designed to capture longitudinal observational data on myasthenia gravis (MG), its treatment, and impact on symptoms, daily activities, and quality of life (QoL). The duration of the registry is 10 years from launch, and approximately 600 patients will be recruited in the US and Europe with no defined upper limit. The registry will link relevant patient- and healthcare professional (HCP)-reported data with clinical data from medical records. Patients will be recruited at clinical sites in all participating countries. In the US only, patients can additionally be recruited via community neurologists or direct-to-patient recruitment.
Official title: Vitaccess Real MG Registry: A Prospective International Observational Patient Registry in Myasthenia Gravis Linking Clinical and Patient-reported Data.
Key Details
Gender
All
Age Range
18 Years - Any
Study Type
OBSERVATIONAL
Enrollment
600
Start Date
2024-07-31
Completion Date
2034-07
Last Updated
2025-07-29
Healthy Volunteers
No
Conditions
Locations (8)
UCI Health
Orange, California, United States
HSHS St. Elizabeth's Hospital
O'Fallon, Illinois, United States
UK HealthCare - University of Kentucky
Lexington, Kentucky, United States
Neurology Associates of South Jersey
Lumberton, New Jersey, United States
Medical University South Carolina
Charleston, South Carolina, United States
University of Texas Health Science Center at Houston
Houston, Texas, United States
Vitaccess Ltd
London, London, United Kingdom
University Hospitals Birmingham
Birmingham, United Kingdom