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Quality of Life and Disease-related Symptoms in Individuals With Systemic Mastocytosis
Sponsor: Uppsala University
Summary
Systemic Mastocytosis is a rare and complex disease caused by accumulation of mast cells. The skin, bones, gastrointestinal tract, bone marrow and liver are the organs most often affected. Symptoms can vary greatly between patients. The study aims to describe the Swedish cohort's self-rated quality of life and levels of disease-related symptoms.
Key Details
Gender
All
Age Range
18 Years - Any
Study Type
OBSERVATIONAL
Enrollment
400
Start Date
2024-03-25
Completion Date
2028-11-15
Last Updated
2025-04-04
Healthy Volunteers
No
Conditions
Interventions
No intervention
This is a cross-sectional observational study, no intervention will be implemented or exposure studied. Data for outcomes of interest will be collected via questionnaires
Locations (2)
Karolinska Institutet
Stockholm, Sweden
Uppsala University
Uppsala, Sweden