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Testing Design Thinking Methodology to Engage Hispanic and Latino Families of Autistic Children in Research.
Sponsor: Thomas Jefferson University
Summary
The goal of this study is to compare the level of engagement in the Hispanic and Latino parents of autistic children and culturally adapt the protocol of Ayres Sensory Integration to improve participation and health outcomes. The main questions it aims to answer are: Does the Design Thinking process result in higher stakeholder engagement and satisfaction in the research process in comparison to Focus Groups? Secondary question: Do cultural adaption using DT data yield higher scores of acceptability and implementation feasibility in comparison to FG methods? Participants will: * Be randomized into two groups of engagement (focus groups and design thinking) * Be blinded (clinicians, selected caregivers, autistic persons, and cultural experts) and will rate the acceptability, feasibility, and cultural appropriateness of the protocol based on DT data higher than the protocol based on FG data.
Key Details
Gender
All
Age Range
18 Years - Any
Study Type
INTERVENTIONAL
Enrollment
186
Start Date
2024-02-01
Completion Date
2026-11-30
Last Updated
2023-11-02
Healthy Volunteers
Yes
Interventions
Design Thinking
Participants attend the DT session through all the stages that include emphasize, define, ideate, prototype and test.
Focus Groups
Participants attend the FG that includes the introduction. discussion, and reflection.