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A EUropean REgistry and Sample Sharing networK to Promote the Diagnosis and Management of Light Chain Amyloidosis (EUREKA)
Sponsor: Fondazione IRCCS Policlinico San Matteo di Pavia
Summary
A prospective patients' registry collecting all new cases of AL amyloidosis evaluated at referral Centers from across Europe and a sample sharing network will be created to study mechanisms of the disease through the use of advanced molecular technologies and big data analysis tools.
Official title: Bonding Molecular Genotyping and Phenotyping to Outcome Measures in AL Amyloidosis: A EUropean REgistry and Sample Sharing networK to Promote the Diagnosis and Management of Light Chain Amyloidosis (EUREKA)
Key Details
Gender
All
Age Range
18 Years - 99 Years
Study Type
OBSERVATIONAL
Enrollment
400
Start Date
2024-01-01
Completion Date
2026-06-01
Last Updated
2024-11-25
Healthy Volunteers
No
Conditions
Locations (6)
Medical Department, Amyloidosis Center, University Hospital, Im Neuenheimer Feld 672
Heidelberg, Germany
Fondazione IRCCS Policlinico San Matteo, Pavia, Viale Golgi 19, 27100
Pavia, Italy
UMC Utrecht, dept Hematology, Amyloid Expertise Center, Utrecht, Heidelberglaan
Utrecht, Netherlands
Instituto de Investigación Sanitaria de Navarra (IdiSNA) C. de Irunlarrea, 3, 31008 Pamplona, Navarra
Pamplona, Spain
University of Applied Sciences and Arts Northwestern Switzerland, Institute of Medical Engineering and Medical Informatics
Muttenz, Switzerland
Universidad de la Republica Hospital de Clinicas "Dr Manuel Quintela"
Montevideo, Uruguay