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Experience Life, Needs and Expectations of Families of Older Polyhandiccaped Persons
Sponsor: Assistance Publique Hopitaux De Marseille
Summary
The general objective of PolyAGE is to explore the life experience of familial caregivers of aging persons with polyhandicap (\>= 35 years). The investigators will question parents (objective 1) and siblings (objective 2) about the experiences, the social representations, the needs and the expectations, as well as the mechanisms associated with their choices about their children with polyhandicap. The objective 3 is to co-analyze parents' and siblings' experiences regarding the aging of their relatives with polyhandicap.
Key Details
Gender
All
Age Range
35 Years - Any
Study Type
OBSERVATIONAL
Enrollment
82
Start Date
2024-06-24
Completion Date
2027-12
Last Updated
2024-12-04
Healthy Volunteers
Yes
Conditions
Locations (7)
APHP Hôpital Marin de Hendaye
Hendaye, France
AP-HP Hôpitaux San Salvadour
Hyères, France
Fondation John Bost
La Force, France
Assistance Publique Des Hopitaux de Marseille
Marseille, France
Université Aix Marseille
Marseille, France
Université de Montpellier
Montpellier, France
Groupe Polyhandicap France (GPF)
Paris, France