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Foundation for Sarcoidosis Research Advanced Cures Registry (FSR-SARC Registry)
Sponsor: Foundation for Sarcoidosis Research
Summary
The goal of the study is to create a longitudinal record of patient reported outcomes for people living with sarcoidosis that maintains privacy. Patients report on the following: demographics, disease symptoms, diagnostic journey, provider experience, disease treatment, and burden of disease. Patients can also link their Electronic Health Records (EHR). The goal is to create a natural history of sarcoidosis, support research, and better understand the needs of the sarcoidosis community.
Key Details
Gender
All
Age Range
7 Years - Any
Study Type
OBSERVATIONAL
Enrollment
6833
Start Date
2013-07
Completion Date
2033-07
Last Updated
2025-09-19
Healthy Volunteers
Yes
Conditions
Interventions
Sarcoidosis diagnosis
Participants have been diagnosed with sarcoidosis.
Locations (1)
Foundation For Sarcoidosis Research
Chicago, Illinois, United States