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Washington University Participant Engagement and Cancer Genomic Sequencing Center (WU-PE-CGS)
Sponsor: Washington University School of Medicine
Summary
The overall goal of the WU-PE-CGS is to build a rigorous, scientific evidence base for approaches that direct engagement of cancer patients and post-treatment cancer survivors as participants in cancer research, and to investigate the impact of directly engaging participants in decisions regarding returning of genomic results on participants' health and satisfaction. Participants in this study will be presented with the choice of types of genomic results to receive, and the Engagement Optimization Unit (EOU) will investigate the impact of this intervention on participant knowledge, expectations of benefit, personal utility, and decisional conflict.
Key Details
Gender
All
Age Range
18 Years - Any
Study Type
INTERVENTIONAL
Enrollment
990
Start Date
2022-10-18
Completion Date
2027-01-31
Last Updated
2025-07-11
Healthy Volunteers
No
Interventions
Return of Genetic Results: Biomarker information from cancer cells
Participants will receive a novel return of results report that is tailored to their choices.
Return of Genetic Results: Inherited mutations related to cancer
Participants will receive a novel return of results report that is tailored to their choices.
Return of Genetic Results: Inherited mutations related to other medical issues
Participants will receive a novel return of results report that is tailored to their choices.
Locations (1)
Washington University School of Medicine
St Louis, Missouri, United States