Clinical Research Directory

Using Parent Engagement to Improve the Wellbeing of Black Premature Infants With Chronic Lung Disease

Sponsor: Johns Hopkins University

Summary

The goal of this pilot study is to test the feasibility and acceptability of a collaborative goal setting intervention to improve parent engagement of Black preterm infants with chronic lung disease in primary care. Preliminary impact on child and parent outcomes will also be explored. The main questions it aims to answer are: 1) Will parents complete a pre-visit questionnaire that asks about goals for the child? 2) Does use of the pre-visit questionnaire help parents to achieve self-identified goals? Participants will fill out a pre-visit questionnaire prior to the child's well visit. The participants will then complete two surveys after the visit (1 week and 2 months after).

Official title: Addressing Health Disparities in Chronic Lung Disease for Preterm Infants Through Parent Engagement

Key Details

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Interventions