Clinical Research Directory

Inclusion Criteria: 1. Must be the primary caregiver of a child with medical complexity, providing care for at least 12 months. 2. Aged 20 years or older. 3. Must be a cohabiting family member of the child and have a biological relationship with the child. 4. Willing to participate in the study. 5. The child with medical complexity being cared for by the participant is between the ages of 1 and 20, diagnosed by a physician with a chronic illness or disability. The child requires the use of medical equipment or devices at home, including respiratory support equipment such as tracheostomy care supplies, artificial ventilation masks, mechanical ventilators (respirators), oxygen concentrators and tanks, suction machines, and percussion vests; nutritional and medication devices such as gastric tubes (nasogastric or percutaneous gastrostomy tubes), enteral feeding pumps, and intravenous catheters; mobility aids including wheelchairs, walkers, and rehabilitation assistive devices; monitoring equipment such as electrocardiogram (ECG) monitors, blood pressure monitors, thermometers, and pulse oximeters; and other medical equipment such as urinary bags and catheters, and pain management pumps (e.g., PCA). Additionally, due to their condition, the child receives regular medical examinations or treatments. Note: Inclusion criteria are the same for both quantitative and qualitative studies. Exclusion Criteria: 1. Diagnosed with a mental illness by a physician. 2. Assessed by the researcher as lacking the reading and comprehension abilities necessary to complete the study. Note: Exclusion criteria are the same for both quantitative and qualitative studies.