Clinical Research Directory

Patients meeting the following inclusion criteria will be considered eligible for this study: 1. Patient and/or legally authorised representative must be willing and able to give informed consent/assent for participation in the study. 2. Patient and parent/caregiver are willing and able (in the Investigator's opinion) to comply with all study requirements (including ability and willingness to comply with virtual visits). 3. Participant has a confirmed pathogenic (class 5) or likely pathogenic (class 4. SCN1A variant, as demonstrated by genetic testing. Exclusion criteria: Patient has any other significant disease or disorder which, in the opinion of the Investigator, may either put the patient at risk because of participation in the study, or may affect the patient's ability to participate in the study.