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RECRUITING
NCT06524726

The International PNH Interest Group PNH Registry

Sponsor: International PNH Interest Group

View on ClinicalTrials.gov

Summary

The aim of this International PNH Interest Group (IPIG) registry is to develop an international database to prospectively collect data on patients with PNH covering clinical outcomes, patient reported outcomes (PROs), and health-resource utilization (HRU) on all enrolled patients, as well as long term safety data.

Key Details

Gender

All

Age Range

Any - Any

Study Type

OBSERVATIONAL

Enrollment

2000

Start Date

2024-05-10

Completion Date

2029-05-10

Last Updated

2024-07-29

Healthy Volunteers

No

Locations (1)

International PNH Interest Group

Altamonte Springs, Florida, United States