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RECRUITING
NCT06524726
The International PNH Interest Group PNH Registry
Sponsor: International PNH Interest Group
View on ClinicalTrials.gov
Summary
The aim of this International PNH Interest Group (IPIG) registry is to develop an international database to prospectively collect data on patients with PNH covering clinical outcomes, patient reported outcomes (PROs), and health-resource utilization (HRU) on all enrolled patients, as well as long term safety data.
Key Details
Gender
All
Age Range
Any - Any
Study Type
OBSERVATIONAL
Enrollment
2000
Start Date
2024-05-10
Completion Date
2029-05-10
Last Updated
2024-07-29
Healthy Volunteers
No
Conditions
Locations (1)
International PNH Interest Group
Altamonte Springs, Florida, United States