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Clinical Epidemiology in Contemporary Patients With Myelofibrosis.
Sponsor: FROM- Fondazione per la Ricerca Ospedale di Bergamo- ETS
Summary
Multicenter retrospective and prospective European observational study. At each site, all consecutive patients with a 2016- or 2022 World Health Organization (WHO) confirmed diagnosis of myelofibrosis (MF) established from 01/01/2018 to 31/12/2027 will be enrolled into the study. Yearly follow-up updates will be scheduled until the end of data collection on 31/12/2028 or until the last available patient visit, whichever comes first. At least 1 year of follow-up will be ensured from the last patient enrolled.
Official title: Clinical Epidemiology in Contemporary Patients With Myelofibrosis (ERNEST-3): A European LeukemiaNet (ELN) Observational Study
Key Details
Gender
All
Age Range
18 Years - 100 Years
Study Type
OBSERVATIONAL
Enrollment
617
Start Date
2024-10-14
Completion Date
2028-12-31
Last Updated
2025-12-26
Healthy Volunteers
No
Conditions
Locations (36)
Hematology Center after Prof.R.H. Yeolyan
Yerevan, Armenia
University of Copenhagen's Roskilde Hospital
Copenhagen, Denmark
Clinical Investigation Center of the Saint Louis Hospital
Paris, France
Internal Medicine C, Hematology, Oncology, Stem Cell Transplantation and Palliative Care, University Medicine Greifswald
Greifswald, Germany
University Hospital Halle Department of Hematology/Oncology
Halle, Germany
University Clinic for Hematology, Oncology, Hemostaseology and Palliative Care Johannes Wesling Medical Center Minden UKRUB, University of Bochum
Minden, Germany
Division of Haematology, Sasson University Hospital Assuta Ashdod, Ashdod, Ben-Gurion University of Negev
Ashdod, Israel
A.S.O. SS. Antonio e Biagio e C.Arrigo, SC Ematologia
Alessandria, Italy
ASST Papa Giovanni XXIII, SC Ematologia
Bergamo, Italy
Policlinico S. Orsola - Malpighi, Unità di Ematologia
Bologna, Italy
Azienda Ospedaliero - Universitaria "Policlinico Vittorio Emanuele" - PO Gaspare Rodolico, Dipartimento di ematologia con Trapianto di midollo Osseo
Catania, Italy
AOU Careggi di Firenze, Divisione di Ematologia
Florence, Italy
ASST Grande Ospedale Metropolitano Niguarda, Divisione di Ematologia
Milan, Italy
Fondazione IRCCS Ca' Granda - Ospedale Maggiore Policlinico, Ematologia
Milan, Italy
Ospedale San Raffaele, Unità Operativa di Ematologia e Trapianto Midollo Osseo
Milan, Italy
Fondazione IRCCS San Gerardo dei Tintori
Monza, Italy
Azienda Ospedaliera Universitaria Federico II, Divisione di Ematologia
Naples, Italy
Azienda Ospedaliero Universitaria Maggiore della Carità, SCDU Ematologia
Novara, Italy
Azienda Ospedale-Università di Padova, Dipartimento di Medicina
Padova, Italy
Università degli Studi di Padova - Policlinico Universitario, Clinica Medica 1
Padova, Italy
Fondazione IRCCS Policlinico San Matteo, Divisione di Ematologia
Pavia, Italy
Fondazione Policlinico Universitario A. Gemelli - Università Cattolica del Sacro Cuore, UCSC Ematologia
Roma, Italy
Policlinico Umberto I, Dipartimento Ematologia, Oncologia e Dermatologia
Roma, Italy
A.O.U. Città della Salute e della Scienza di Torino - Ospedale Molinette- S.C. Ematologia U
Torino, Italy
ASST dei Sette Laghi (Ospedale di Circolo e F. Macchi), Divisione U.O. Ematologia
Varese, Italy
Azienda Ospedaliera Universitaria Integrata - Ospedale Borgo Roma, Unità di Ematologia
Verona, Italy
Azienda ULSS 8 Berica - Ospedale San Bortolo, Divisione di Ematologia
Vicenza, Italy
Institute of Oncology, State University of Medicine and Pharmacy - Department of Oncology, Hematology and Radiotherapy
Chisinau, Moldova
Department of Hematology, University Hospital, Jagiellonian University Medical College
Krakow, Poland
Department and Clinic of Haematology, Blood Neoplasms, and Bone Marrow Transplantation, Wroclaw Medical University
Wroclaw, Poland
Department of Hematology and Bone Marrow Transplantation, Fundeni Clinical Institute
Bucharest, Romania
Institut d'Investigacions Biomèdiques August Pi i Sunyer (IDIBAPS) - Hospital Clinic
Barcelona, Spain
Hematology and Hemotherapy Department, 12 de Octubre University Hospital
Madrid, Spain
Servicio de Hematología - Hospital Clínico Universitario de Valencia
Valencia, Spain
School of Medicine, Dentistry and Biomedical Sciences Queen's University Belfast
Belfast, United Kingdom
Guy's and St. Thomas' NHS Foundation Trust.
London, United Kingdom