Clinical Research Directory

CCHS Secure Health-hub Advancing Research Efforts (CCHS SHARE)

Sponsor: Ann & Robert H Lurie Children's Hospital of Chicago

Summary

The purpose of this study is to capture longitudinal natural history data in Congenital Central Hypoventilation Syndrome (CCHS). This will include capturing standardized clinical data from standard of care assessments at several CCHS referral centers. Funding source-FDA OOPD

Official title: CCHS SHARE: A Multi-center Longitudinal Natural History Study

Key Details

Conditions

Locations (1)