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Promoting Resilience Among Adolescents and Young Adults With Sickle Cell Disease
Sponsor: Boston Children's Hospital
Summary
Adolescents and young adults with sickle cell disease (SCD) face challenges managing their illness and maintaining their well-being. This study proposes to test the feasibility and acceptability of a resilience-promoting intervention through a Collaborative Care Model. The primary goal is to determine with the resilience intervention (PRISM) is feasible and acceptable for adolescents and young adults with SCD. Exploratory outcomes include whether this intervention improves depression, anxiety, and pain interference.
Key Details
Gender
All
Age Range
12 Years - 25 Years
Study Type
INTERVENTIONAL
Enrollment
25
Start Date
2025-10-23
Completion Date
2030-09
Last Updated
2025-12-10
Healthy Volunteers
No
Conditions
Interventions
Collaborative Care Model
The interprofessional team will meet weekly to review survey scores, endorsed psychological and physical health needs, as well as other concerns. They will conduct assessments as a group that may include referrals for additional support.
Promoting Resilience in Stress Management
PRISM targets 4 resilience resources: stress management, goal-setting, cognitive reframing and meaning-making. It is delivered one-on-one by trained coaches in English or Spanish via HIPAA compliant video-conference or in-person. Sessions are delivered every 1-2 weeks based on patient preference. To facilitate practice between sessions, all participants 13 or older have access to the digital PRISM app.
Locations (1)
Boston Children's Hospital
Boston, Massachusetts, United States