Clinical Research Directory

Spasmodic Dysphonia Interviews

Sponsor: Manchester University NHS Foundation Trust

Summary

Previous research has shown that patients with voice disorders often have a lower quality of life and struggle with employment. Spasmodic Dysphonia (SD) is a voice disorder that causes abrupt and uncontrollable spasms of the voice box, often resulting in the person having lifelong changes in their voice and speech pattern. The current mainstay of treatment is injecting botulinum toxin (BT) injections into the vocal cord to ease the spasms. The same research team conducted a pilot study in April 2021 on patients with SD. The pilot study used questionnaires and short interviews to understand the livelihood of 10 SD patients. It displayed that SD may impact patients' quality of life. The investigators now aim to run an official research project, ethically approved, to explore the following questions further: 1. Does SD impact the socio-economic lives of its patients? If so, how? 2. What role does BT play in the socio-economic livelihood of SD patients? To answer these questions, the investigators aim to interview 20 patients with Spasmodic Dysphonia.

Official title: The Socioeconomic Impact of Spasmodic Dysphonia Patients and the Role of Botulinum Toxin

Key Details

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Interventions

Locations (1)