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Testing the Sickle Cell Caregiver Collaboration for Child Development (SCCCD) Intervention
Sponsor: Washington University School of Medicine
Summary
Sickle cell disease affects 100,000 people and 2,000 newborns each year; 50% of these children have a developmental deficit (\>2 SD) before the age of 3. Early identification of developmental deficit supports timely intervention, but children with sickle cell disease are grossly underdiagnosed and undertreated. The goal of the proposed study is to determine the incidence and severity of developmental deficit at 9, 18 and 30 months of age among children with sickle cell disease and test a 12-month, home-based caregiver intervention with this disproportionately affected population.
Official title: Early Identification and Intervention Of Developmental Delay Among Infants And Toddlers With Sickle Cell Disease Using the Sickle Cell Caregiver Collaboration for Child Development (SCCCD) Intervention
Key Details
Gender
All
Age Range
6 Months - 31 Months
Study Type
INTERVENTIONAL
Enrollment
50
Start Date
2025-01-01
Completion Date
2028-07-31
Last Updated
2024-08-23
Healthy Volunteers
No
Conditions
Interventions
Sickle Cell Collaboration for Child Development
The Sickle Cell Collaboration for Child Development (SCCCD) combines the Parents as Teachers curriculum with experienced occupational therapy to help families and children meet their learning and developmental goals.
Locations (1)
Washington University School of Medicine
St Louis, Missouri, United States