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Improving Congenital Heart Disease Care
Sponsor: University of California, San Francisco
Summary
The theory-informed digital health intervention, called as "Empower My Congenital Health (EmpowerMyCH)" aims to activate and engage ACHD patients in building confidence toward navigating the adult healthcare system. This tool is built after incorporating the theories of behavior change, gathering inputs from target patients in all stages of its design and implementation. The key features of the tool include a digital medical passport, updated congenital information, community support, and patient stories and advice. The investigators aim to test the acceptability, feasibility, efficacy, and effectiveness of the intervention.
Official title: Improving Care for Adults With Congenital Heart Disease
Key Details
Gender
All
Age Range
18 Years - Any
Study Type
INTERVENTIONAL
Enrollment
1000
Start Date
2024-09-05
Completion Date
2027-08-31
Last Updated
2026-01-23
Healthy Volunteers
No
Conditions
Interventions
Digital patient empowerment intervention
The intervention has features such as a digital medical passport, updated health-related information, community support and patient/peer stories and advice
Locations (1)
University of California, San Francisco
San Francisco, California, United States