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Responding to Late Effects in Survivors of Childhood Cancer
Sponsor: Remziye Semerci
Summary
Survivors of childhood cancer need ongoing support to navigate their needs after cancer treatment. Using technology may offer us new ways to collect and share information about cancer survivorship follow-up with young survivors, their carers, and primary care providers. Through the support of the Kids Cancer Project, in Phase 1 of this study, will co-design an electronic survivorship 'portal' that links young survivors with their cancer treatment information, and health care teams. In later Phases we will implement and evaluate the survivorship portal.
Official title: Responding to Late Effects in Survivors of Childhood Cancer (RECOVER)
Key Details
Gender
All
Age Range
Any - 35 Years
Study Type
INTERVENTIONAL
Enrollment
150
Start Date
2024-06-01
Completion Date
2026-12
Last Updated
2024-09-19
Healthy Volunteers
Yes
Conditions
Interventions
Model of Care
The intervention described in the RECOVER study involves developing, implementing, and evaluating a comprehensive Model of Care for childhood cancer survivors. This model, known as the RECOVER Model of Care, integrates digital health solutions and is co-designed with input from childhood cancer survivors, caregivers, and clinical experts. The intervention aims to address the long-term and late effects of cancer treatment by providing continuous, risk-based, interdisciplinary care. It includes steps such as identifying patients nearing the end of treatment, conducting health assessments, creating personalized care plans, and coordinating follow-up care through digital platforms. The study will assess the feasibility, acceptability, and effectiveness of this model in improving the quality of life and care experience for survivors and their families.
Locations (1)
Queensland Children's Hospital
Brisbane, Center, Australia