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CEDATA GPGE - a Patient Registry for Children and Adolescents With Inflammatory Bowel Disease
Sponsor: University of Giessen
Summary
CEDATA GPGE collects clinical data of children and adolescents with IBD from paediatric gastroenterology centers in german-speaking countries. Data is obtained from participating centers in pseudonymized way via an online platform at the beginning and during followup of the disease. The leading working group of the paediatric gastroenterology society GPGE e.V. includes 15 experts in the field who meet twice yearly and coordinate research and quality improvement initiatives.
Official title: CEDATA GPGE Patient Registry for Children and Adolescents With IBD
Key Details
Gender
All
Age Range
Any - 18 Years
Study Type
OBSERVATIONAL
Enrollment
6300
Start Date
2004-09-01
Completion Date
2034-12-01
Last Updated
2024-09-23
Healthy Volunteers
No
Conditions
Interventions
Patient Registry without intervention
This is a patient registry that collects real world data without intervening with therapeutic decision
Digital Registry and Feedback on clinical data
The data is entered via a validated online platform and is provided back to the center in aggregated form
Locations (1)
University Giessen
Giessen, Germany