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RECRUITING

NCT06617741

Myasthenia Gravis Foundation of America Global MG Patient Registry

Sponsor: Myasthenia Gravis Foundation of America

View on ClinicalTrials.gov

Summary

The goal of this observational study is to learn about the experiences of people living with Myasthenia Gravis (MG) in the United States. The main questions it aims to answer are: * How and when are people with MG diagnosed? * What are the most common symptoms associated with MG? * What treatments are being used to treat MG? * What are the impacts of MG on activities of daily living, employment and quality of life? * What are the experiences with exacerbation, hospitalization and healthcare access for people with MG? Participants will answer a survey to enroll in the study, and be invited to fill out an update survey twice a year.

Key Details

Gender

All

Age Range

18 Years - Any

Study Type

OBSERVATIONAL

Enrollment

3800

Start Date

2013-10-12

Completion Date

2029-09-19

Last Updated

2024-09-27

Healthy Volunteers

Conditions

Myasthaenia Gravis Myasthenia Myasthenia Gravis Associated with Thymoma Myasthenia Gravis Crisis Myasthenia Gravis Exacerbations Myasthenia Gravis Generalised Myasthenia Gravis with Exacerbation (Disorder)Myasthenia Gravis, Adult Form Myasthenia Gravis, Generalized Myasthenia Gravis, Ocular Myasthenia Gravis, Thymectomy Myasthenia Gravis Myasthenia Gravis, MuSK

Locations (1)

Myasthenia Gravis Foundation of America

Westborough, Massachusetts, United States