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Rare AutoImmune SElf-management Programme Development
Sponsor: University of the West of England
Summary
The rare autoimmune rheumatic diseases (RAIRDs) are life-long multi-system diseases that are life or organ threatening. RAIRDs can impair quality of life similar to chronic diseases such as heart failure. The aim of the study is to explore content and structure of a support programme for people with RAIRDs in focus groups and survey meetings.
Official title: Rare Autoimmune Self-management Programme Development
Key Details
Gender
All
Age Range
18 Years - Any
Study Type
OBSERVATIONAL
Enrollment
360
Start Date
2024-10
Completion Date
2026-04
Last Updated
2024-10-15
Healthy Volunteers
No
Conditions
Interventions
Non-interventional study
The study will consist of focus groups and a large scale patient survey
Locations (1)
University of the West of England/ Bristol Royal Infirmary
Bristol, United Kingdom