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ENROLLING BY INVITATION
NCT06664541
Decision-Making and Quality of Life Surrounding Hematologic Disease and Gene Therapy
Sponsor: Georgetown University
View on ClinicalTrials.gov
Summary
Determine knowledge, attitudes, and beliefs among adult patients, and parents of pediatric patients, with transfusion dependent beta-thalassemia and sickle cell disease toward gene therapy to treat their or their child's illness, and to assess the likely impact of gene therapy on patients' quality of life.
Key Details
Gender
All
Age Range
18 Years - Any
Study Type
OBSERVATIONAL
Enrollment
100
Start Date
2024-10-01
Completion Date
2026-12-01
Last Updated
2024-10-29
Healthy Volunteers
No
Locations (1)
Georgetown University Medical Center
Washington D.C., District of Columbia, United States