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MyRareDiet A Novel Diet Tracking Tool
Sponsor: Oregon Health and Science University
Summary
The investigators propose to develop and validate MyRareDiet® (MRD) to address an unmet need in the inborn errors of metabolism (IEM) population to assist with dietary management designed to increase adherence and compliance to treatment guidelines, while facilitating the collection of dietary data from individuals with IEM for research purposes.
Official title: MyRareDiet™: A Diet Tracking, Monitoring and Optimization mHealth Tool for Patients With Inborn Errors of Metabolism
Key Details
Gender
All
Age Range
1 Year - 80 Years
Study Type
INTERVENTIONAL
Enrollment
60
Start Date
2024-11-15
Completion Date
2025-12-31
Last Updated
2024-10-30
Healthy Volunteers
No
Interventions
MDR diet assessment
Participants will record their dietary intake on the MyRareDiet (MRD) app and nutrient content will be assessed to validate MRD compared to a traditional interviewer assessed 24 hour recall.
24 hour recall
A trained nutritionist will conduct a telephone multi-pass 24 hour diet recall on 3 randomized nonconsecutive days. The dietary intake will be analyzed using NDSR and metabolic pro and nutrient intake will be compared to the nutrient intake assessed with the MRD app.