Clinical Research Directory

Inclusion criteria - ICU survivors 1. Adult patients (age greater than or equal to 18 years) 2. Life expectancy greater than or equal to 6 months as determined by the attending physician 3. High risk for long-term functional sequelae following ICU discharge, defined as ICU stay greater than or equal to 4 days, or involving at least one of: * mechanical ventilation (any, i.e., invasive or non-invasive) * tracheostomy * delirium (defined as Confusion Assessment Method (CAM) positive or documented history of delirium in the patient's medical record by the clinical care team at some point during their ICU admission) * lack of access to a primary care physician for clinical follow-up * access to email or mail to complete follow-up questionnaires * presence of an informal caregiver Inclusion criteria - Caregivers 1. Informal caregiver (e.g., spouse, offspring) for ICU survivor as defined above 2. Adult (age greater than or equal to 18 years) Exclusion criteria - ICU survivors and caregivers * Neurological or communication difficulties which would preclude completion of follow-up assessments or participation in focus groups * Inability to speak or read English (required for completion of standardized questionnaires, clinical assessments, and for participation in focus groups) * Failure to provide consent/failure to have consent provided by a substitute decision maker