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Video Inspired Discussions About Ethical Outcomes in Pediatrics
Sponsor: Massachusetts General Hospital
Summary
The goal of this clinical trial is to learn if the VIDEO-PEDS intervention works to improve Goals of Care communication between clinicians and parents of children with cancer. The main questions it aims to answer are: Does the intervention improve Goals of Care documentation? Does it improve patient outcomes (including less invasive preferences for resuscitation and interventions, less hospital utilization, and more palliative care and hospice use)? Does it improve parent outcomes (including health satisfaction and feeling heard and understood per survey scores)?
Official title: A Multisite RWCT Comparing the Effectiveness of a Goals of Care Video and Navigator Intervention, the VIDEO-PEDS Experience, Versus Usual Care in Pediatric Cancer
Key Details
Gender
All
Age Range
Any - Any
Study Type
INTERVENTIONAL
Enrollment
567
Start Date
2026-04-15
Completion Date
2030-04-15
Last Updated
2026-02-27
Healthy Volunteers
No
Conditions
Interventions
VIDEO-PEDS
Following enrollment, parents will receive a link to view the refined video decision aid that is designed to prompt parents to think about their goals of care for their child with cancer, and then to react by engaging in communication with a trained member of the research team called the Navigator and eventually their clinical team over the course of the 9-month study duration.
VIDEO-PEDS pilot
This is the 3-month pilot version of the intervention, which will be further developed for the eventual RWCT.
Focus Group
Parents will view the Video aid and provide fascilitated feedback in an audio-recorded virtual group setting.
Locations (4)
Children's of Alabama at Birmingham
Birmingham, Alabama, United States
Children's Hospital of Atlanta
Atlanta, Georgia, United States
Dana Farber Cancer Institute
Boston, Massachusetts, United States
Dartmouth Hitchcock Medical Center
Lebanon, New Hampshire, United States