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RECRUITING
NCT06792396

Study of Patients with Electrical Status Epilepticus in Sleep

Sponsor: East Suffolk and North Essex NHS Foundation Trust

View on ClinicalTrials.gov

Summary

Our aims are: 1. To understand the diagnostic practices, treatment and long term management and outcomes for patients diagnosed with ESES locally. 2. To establish a regional and national guideline for the diagnosis and management of patients with ESES. The secondary questions that can be addressed with this case series review include the variability of clinical care given to patients with this condition, and for example, the duration of time it takes to obtain diagnostic tests and assessments by psychologists.

Official title: Study to Understand the Diagnostic Measures, Management Options and Long Term Outcomes in a Local Cohort of Patients with Electrical Status Epilepticus in Sleep, Also Known As a Developmental And/or Epileptic Encephalopathy with Spike-Wave Activation in Sleep

Key Details

Gender

All

Age Range

1 Year - 16 Years

Study Type

OBSERVATIONAL

Enrollment

20

Start Date

2024-08-12

Completion Date

2025-03

Last Updated

2025-01-24

Healthy Volunteers

No

Locations (1)

East Suffolk and North Essex NHS Foundation Trust

Colchester, United Kingdom