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Study of Patients with Electrical Status Epilepticus in Sleep
Sponsor: East Suffolk and North Essex NHS Foundation Trust
Summary
Our aims are: 1. To understand the diagnostic practices, treatment and long term management and outcomes for patients diagnosed with ESES locally. 2. To establish a regional and national guideline for the diagnosis and management of patients with ESES. The secondary questions that can be addressed with this case series review include the variability of clinical care given to patients with this condition, and for example, the duration of time it takes to obtain diagnostic tests and assessments by psychologists.
Official title: Study to Understand the Diagnostic Measures, Management Options and Long Term Outcomes in a Local Cohort of Patients with Electrical Status Epilepticus in Sleep, Also Known As a Developmental And/or Epileptic Encephalopathy with Spike-Wave Activation in Sleep
Key Details
Gender
All
Age Range
1 Year - 16 Years
Study Type
OBSERVATIONAL
Enrollment
20
Start Date
2024-08-12
Completion Date
2025-03
Last Updated
2025-01-24
Healthy Volunteers
No
Conditions
Locations (1)
East Suffolk and North Essex NHS Foundation Trust
Colchester, United Kingdom