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Prospective Evaluation of the Results of Multidisciplinary Follow-up After a Transitional Consultation for Esophageal Atresia
Sponsor: Assistance Publique - Hôpitaux de Paris
Summary
A transition consultation for adult patients with esophageal atresia, involving medical and paramedical stakeholders, was set up at Hôpital Saint-Louis in 2020. The aim of this initiative is to: 1. initiate adult medical, psychological and social follow-up; 2. empower these adults in their future care; 3. establish a personalized follow-up schedule. This project is the first to focus on post-traumatic stress disorder (PTSD) in young adults with esophageal atresia. A 3-year analysis of the somatic and psychosocial variables analyzed will confirm the validity of this initiative, and define its optimal contours for improving these patients' quality of life as adults.
Official title: Evaluation Prospective Des résultats du Suivi Pluridisciplinaire Mis en Place au décours d'Une Consultation de Transition Pour l'atrésie de l'œsophage
Key Details
Gender
All
Age Range
18 Years - 30 Years
Study Type
OBSERVATIONAL
Enrollment
50
Start Date
2024-12-19
Completion Date
2030-12-19
Last Updated
2025-03-06
Healthy Volunteers
No
Conditions
Interventions
Follow-up of the patients during 3 years
Evaluation of PTSD prevalence, anxiety-depressive state, quality of life, look for a correlation between their clinical history and PTSD. Analysis of the nutritional, gastrointestinal and respiratory status.
Locations (1)
Hopital Saint Louis
Paris, France