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Essen Amyloidosis Registry
Sponsor: University Hospital, Essen
Summary
The Essen Amyloidosis Registry (EAR) is a prospective, observational registry designed to collect comprehensive clinical data on patients diagnosed with systemic amyloidosis. The registry aims to improve the understanding of disease progression, diagnostic pathways, and treatment outcomes. The registry is hosted at the University Hospital Essen and follows patients longitudinally. Inclusion is open to all patients with suspected or confirmed amyloidosis who provide informed consent.
Key Details
Gender
All
Age Range
18 Years - Any
Study Type
OBSERVATIONAL
Enrollment
400
Start Date
2024-05-08
Completion Date
2029-07-01
Last Updated
2025-08-21
Healthy Volunteers
Yes
Conditions
Locations (1)
University Hospital Essen
Essen, North Rhine-Westphalia, Germany