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DMD Voice: Qualitative Interviews With Patients and Caregivers
Sponsor: Red Nucleus Enterprise Solutions, LLC
Summary
The purpose of this study is to understand DMD functional losses or abilities and their association with independence and quality of life from the perspective of individuals with DMD and/or and their caregivers. This is a qualitative interview study in which individuals with DMD and/or their caregivers will be asked to participate in a semi-structured, approximately 60- minute interview. Interviews will focus on functional abilities and independence. Caregivers and boys with DMD will be interviewed. This study includes no treatment nor intervention; however, some participants are being treated by a drug that is approved in the U.S. and the U.K. and under investigation in other geographies.
Official title: Duchenne Muscular Dystrophy Quality of Life: Qualitative Interviews With Patients and Caregivers
Key Details
Gender
MALE
Age Range
10 Years - Any
Study Type
OBSERVATIONAL
Enrollment
68
Start Date
2025-03-31
Completion Date
2026-12
Last Updated
2025-04-30
Healthy Volunteers
No
Conditions
Locations (1)
Red Nucleus
Yardley, Pennsylvania, United States