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Dutch Registry of Pediatric Cardiac Arrest
Sponsor: Matthijs de Hoog
Summary
The goal of this observational study is to understand the long-term outcomes of children in the Netherlands who experience cardiac arrest, either in or outside of the hospital. The main questions it aims to answer are: What are the survival rates and neurological outcomes in children after cardiac arrest? What types of emergency and post-resuscitation care are provided, and how do they impact long-term recovery? How do children and their families function over time after the event? Researchers will analyze data from routine medical records and follow patients through standard outpatient visits. No extra procedures will be required beyond normal care. For those who survive to hospital discharge, additional follow-up data will be collected with consent. Participants will: Be children under 18 years old who have had a cardiac arrest and were treated in one of the seven participating academic hospitals Have their routine medical care data collected anonymously Be invited (if surviving) for follow-up visits at 3, 12, and 24 months post-arrest and at specific ages (5, 8, 12, and 17 years) to assess physical and psychological recovery
Official title: Pediatric Resuscitation Neuroprognostication and Outcomes Registry
Key Details
Gender
All
Age Range
24 Hours - 18 Years
Study Type
OBSERVATIONAL
Enrollment
500
Start Date
2023-06-14
Completion Date
2030-01
Last Updated
2025-04-22
Healthy Volunteers
No
Conditions
Locations (7)
Radboud umc
Nijmegen, Gelderland, Netherlands
MUMC
Maastricht, Limburg, Netherlands
Amsterdam UMC
Amsterdam, North Holland, Netherlands
UMCG
Groningen, Provincie Groningen, Netherlands
LUMC
Leiden, South Holland, Netherlands
Erasmus MC
Rotterdam, South Holland, Netherlands
UMCU
Utrecht, Utrecht, Netherlands