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Resiliency Intervention for Patients With ALS and Their Care-Partners
Sponsor: Massachusetts General Hospital
Summary
The purpose of this study is to pilot a resiliency and coping intervention for persons recently diagnosed with Amyotrophic Lateral Sclerosis (ALS) and their primary informal caregivers. The data investigators gather in this study will be used to further refine our intervention.
Official title: Resilient Together-ALS (RT-ALS): A Dyadic Mind-body Meaning Intervention for People With ALS and Their Informal Care-partners
Key Details
Gender
All
Age Range
18 Years - Any
Study Type
INTERVENTIONAL
Enrollment
20
Start Date
2026-05-13
Completion Date
2027-02-28
Last Updated
2025-11-17
Healthy Volunteers
No
Interventions
Resilient Together ALS
This intervention will teach resiliency and coping skills (mindfulness, meaning making, etc) to dyads soon after ALS diagnosis in order to manage distress associated with an ALS diagnosis. These sessions will take place over Zoom with both the person diagnosed with ALS and their primary informal caregiver.
Locations (1)
Massachusetts General Hospital
Boston, Massachusetts, United States