Clinical Research Directory

Validation of a Questionnaire for Quality of Life Assessment in Patients With Transthyretin Amyloidosis.

Sponsor: Hospital General de Niños Pedro de Elizalde

Summary

Prospective study of development and validation of a questionnaire on quality of life in patients with Hereditary Amyloidosis The questionnaire development process will include 4 medical specialists experts in Transthyretin Amyloidosis (2 neurologists, 1 cardiologist, 1 physician clinical/hepathologist), 1 psychologist; 1 social worker; and 3 patients (with confirmed Hereditary amyloidosis) members of ALAPA. (Local PAG) Population and sample:

Official title: Validation of a Questionnaire for Quality of Life Assessment in Patients With Transthyretin Amyloidosis in Argentina.

Key Details

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Locations (1)