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Characteristics and Impacts of X-linked Hypohidrotic Ectodermal Dysplasia (XLHED) in Boys: An Observational International Study
Sponsor: Pierre Fabre Medicament
Summary
This is an observational, multicentre, international study over a 2-year follow-up period. The aim of this study is to understand how XLHED affects the lives of young male patients and their families over time. By studying the natural course of the disease and its impact, the study could improve the understanding of the challenges faced by these patients and their families.
Official title: Natural History and Disease Burden of X-linked Hypohidrotic Ectodermal Dysplasia (XLHED): An Observational, Multicentre, International Study (EdeReaLife)
Key Details
Gender
MALE
Age Range
0 Years - 11 Years
Study Type
OBSERVATIONAL
Enrollment
27
Start Date
2023-07-19
Completion Date
2026-11-19
Last Updated
2025-07-31
Healthy Volunteers
No
Locations (2)
Necker hospital
Paris, France
Uniklinikum Erlangen
Erlangen, Germany