Clinical Research Directory
Browse clinical research sites, groups, and studies.
Initial Testing of a Behavioral Intervention About Genetic Services for Families at Risk of Lynch Syndrome
Sponsor: University of Alabama at Birmingham
Summary
The purpose of the study is to see if our education materials help people at risk for Lynch syndrome decide about seeking genetic services. Untested relatives of patients with Lynch syndrome will be recruited to complete a baseline survey and will be randomized to receive either the an information letter or an information letter plus a booklet. Two follow-up surveys will be administered over the span of 6 months. Participants will also be invited to join an optional exit interview to provide feedback.
Official title: A Randomized Controlled Pilot Trial of a Behavioral Intervention to Increase Uptake of Genetic Services Among Relatives at Risk of Lynch Syndrome
Key Details
Gender
All
Age Range
18 Years - Any
Study Type
INTERVENTIONAL
Enrollment
185
Start Date
2025-09-15
Completion Date
2027-08
Last Updated
2026-01-07
Healthy Volunteers
Yes
Conditions
Interventions
Information Letter and Booklet
an information letter with a booklet for at-risk families highlighting implications of family history, testing considerations, steps for genetic testing, and potential costs.
Information Letter
an information letter with basic information about LS and implications of counseling and testing of LS, and a few websites for more information and locating genetic counselors.
Locations (1)
UAB
Birmingham, Alabama, United States