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Designing Care Management for Hospice Transitions for Persons Living With Advanced Dementia
Sponsor: New York University
Summary
This study will test a care management intervention to guide end-of-life care and hospice transitions for persons with dementia and their care partners receiving home healthcare and ascertain feasibility, acceptability, fidelity, and usability of a dementia care management hospice transitions checklist. This study will also examine hospice enrollment, time to enrollment, and care partner satisfaction with the intervention. The intervention will be delivered within usual care management within a large home healthcare agency.
Official title: ENGAGE-D: Designing Care Management for Hospice Transitions for Persons Living With Advanced Dementia
Key Details
Gender
All
Age Range
18 Years - Any
Study Type
INTERVENTIONAL
Enrollment
96
Start Date
2025-10
Completion Date
2028-07-31
Last Updated
2025-09-19
Healthy Volunteers
Yes
Conditions
Interventions
Dementia Care Management Checklist for Hospice Transitions
Intervention: After appropriate care partners of hospice-eligible PLWD are identified who will be receiving the checklist intervention, care managers will perform telephonic outreach to engage them in a conversation about care needs (as they would in typical clinical practice). The telephonic outreach will be followed up with a recommendation for follow up by a medical provider who may conduct a hospice care assessment and engage the care partner in decision-making surrounding the hospice referral and enrollment process. This intervention was co-designed with care partners, home healthcare professionals, administrators, and medical providers. It is meant to be comprehensive and speak to the needs of all relevant parties engaged in the care of persons with dementia. It is developed so that it can be scaled and implemented widely.
Locations (1)
NYU Rory Meyers College of Nursing and VNS Health
New York, New York, United States