Clinical Research Directory

Inclusion Criteria: * Clinical diagnosis of, or active evaluation for, a neuromuscular disorder * Able to ambulate (with or without usual orthoses/assistive device) sufficiently to attempt a 6-minute walk. * Note: Acceptable if the patient needs to take breaks or sit during the test. Those unable to finish are counted as protocol deviations, not exclusions. * Medically stable on the test day (no acute illness or recent surgery that would contraindicate moderate exercise). * Child able to understand simple instructions in English and provide assent (if applicable based upon age and developmental level); parent/guardian able to provide consent in English. Exclusion Criteria: * Non-ambulatory or unsafe to attempt walking as judged by the treating physician. * Severe cognitive/behavioral impairment that precludes following instructions. * Acute cardiopulmonary, orthopedic, or other medical condition that makes walking unsafe on the test day. * Non-English-speaking family (materials are available only in English for this pilot). * Any child/parent who declines consent/assent or withdraws at any time.