Clinical Research Directory

Inclusion Criteria: * Age ≥ 18 years * Diagnosis of chronic or progressive illness with a primary caregiver, should patient wish to involve one * Willing and able to participate in a semi-structured recording lasting approximately 60 minutes. Dyad recordings conducted for participants who elect to involve a caregiver * Willing and able to participate in a single follow-up recording. Dyad follow up recordings conducted for participants who elect to involve a caregiver Exclusion Criteria: * Uncontrolled and/or intercurrent illness which limits participation in study recording * Vulnerable populations: persons lacking capacity for understanding participation in this study